Blinded by a sniper

 I've been looking back at / backing up this blog today, and I recalled that I had a favorite reader / commenter. 

Blind Sniper - what up? I should have tried harder to invade your anonymity.

 

If you exist (read: if you still pay attention), drop a comment. If not, I really wish you well in the lost internet ether.

I'm baaaaa...

...aack.

I've decided to post regularly again. But I won't be doing so here, I'll be doing so there. If you're still interested, come check me out.

Love,
Elena

What I need to feel human:

We all have things that help us to maintain our sense of humanity and personhood. Here are mine:

• places to explore on foot / long walks in the shade of towering conifers
• music that I not only love and find aesthetically beautiful, but that also gives me a sense of transcendence.
• being near bodies of water
• coffee (morning, afternoon)
• listening intently to someone very smart every once in a while (conversations, lectures, podcasts)
• being listened to every once in a while
• being able to express myself with verbal fluency, and understanding everything I hear in response without impediment (during at least half of my waking hours)
• being seen and understood as approximately what and who I am
• time to work, read, write think and reflect without interruption
• times when I am completely alone
• quiet
• reading. learning. 
• lobsters at least once a year
• light
• knowing what to do as well as when and how to do it (feeling competent) every once in a while
• having my incompetence, mistakes and weaknesses met with compassion
• having certain days on which I can sleep in and on which I can spend 0 seconds putting makeup on my face
• autumn at least once a year
• old brick buildings 
• a few people who love and accept that these are the things I need

Some of these surely sound trite or obvious or entitled and privileged (oh fuck am I aware of how privileged some of these expectations make me) but they are, aside from basic bodily imperatives, the things I need to feel human. Some are more important than others (I think I might still feel like a person without ever eating lobster again), but there you have it. I think we can sum it up thusly: nature, a sense of belonging, solitude. 

Holy Land

Every time I come home, I'm a different person than when I was last here. I exist, change, and grow older on a track that runs parallel to this one, the one on which my loved ones travel.

Although, maybe the tracks aren't parallel after all. They intersect when I come to visit.

During these visits, I remember who I was - who I am. My loved ones see and hear me, and note the little ways in which I've changed. I return the favor. I am a full-fledged member of my environment. It's hard to say whether or not I still belong (not quite?), but I am strangely capable of interacting with  and influencing the world around me. I feel fully human.

My friend Melis and I agreed before I arrived that we would explore weird places in Connecticut (they are numerous). Yesterday, we climbed up a hill that was covered in overgrowth and brush, and we laid our eyes on Holy Land USA. Holy Land is an abandoned religious theme park. It was strange before it fell into disrepair (or so I've heard); it's downright creepy now. We weren't prepared for how hard it would be to get to. I made it in sandals and a skirt, my purse flung across my shoulder. There were times when I lost my balance and feared I might not find it again, but I managed, and managed well.

 And I realized that, if I could, I'd spend every day trespassing. 

Maybe that's why I moved to Finland in the first place. Maybe I just saw an opportunity to trespass. Maybe I intended to search for answers in places I don't belong.

Maybe I need to stop fearing the consequences and just enjoy looking around.

The Meeting Places

I'm back to work. I no longer have a limp, and I'm able to walk long(ish) distances. I'm able to write fairly normally, with maybe a hint of uncontrolled messiness in my handwriting. The fatigue lasted what seemed like a long while; it was only about a week and a half ago that the constant exhaustion started to subside. It was around then, too, that I started being able to control my emotions again. Needless to say, I cried a lot. I'm crying less now, which I consider a triumph. My balance has remained kind of weird, although it has improved a lot and doesn't seem to affect my mobility. I mainly notice it when I get some rather crazy vertigo for a few seconds if I'm in a car that suddenly accelerates. Other than that, I just kind of notice that something isn't right, that it's not always easy to find my center again if I'm thrown off balance. Nothing dangerous or outwardly visible. Oh, and I start feeling drunk after even a little alcohol. Drinking less is far from the worst thing in the world.

I'm on a new medication (which is a pill rather than an injection!) and you can bet that I won't be missing any doses ever again if I can help it.

In dealing with all this, I've realized that there are certain issues I haven't been dealing with head on. I'm telling you this because I think they're directly related to my life and integration here. I figure it might be of interest, if that's what you're here for.

I've put a lot of work into fitting in, into being unremarkable in the context of Finland. Recently, I've come to realize that this is an impossible goal to achieve. I'll always look different. I'll always talk funny. I'll always be different. That's not necessarily a bad thing, but it is an inescapable fact.

I'm perfectly conversational in Finnish, yet I feel as if I'm impossibly bad at socializing. I'm incapable of being funny or charming (not that either of these things is my forte in English either), and sometimes I even feel as if being sufficiently polite or sympathetic is beyond my ken. A student's mother called me last week to tell me that her child has been ill. Comprehension went smoothly both ways. Yet I felt as if there were something more she wanted from me - some appropriately reassuring words, perhaps. I couldn't really go off script, so to speak, in order to provide that.

I have it on good authority that some people find me closed off and hard to engage. It's just that small talk is somehow harder than deeper, more abstract conversation. And, often, when I do try to insert myself into the kind of conversations I'm okay at, people often smile at me politely and then move on, or else talk over me. I don't necessarily fault anyone but myself for this; I should talk louder, with more confidence and, most importantly, more often.

In truth, though, the isolation that results from all this is very painful. For five years, I've anticipated that my ability to communicate would improve at the same rate as my language ability. In truth, it has developed much, much more slowly.

The Meeting Places is a band whose pretty, shimmery music has been comforting me lately, in part because it reminds me of when I felt better and more like a human. I also hope that you and I can find places here and there in which to meet in the middle.

Edit: I want to make it clear that I appreciate and thank those who have been kind to me and tried to make me feel welcome. Thank you.

Five

Saying goodbye at 26

I'm coming up on my fifth year here in Finland. I started this blog in February of 2011, in anticipation of my move. I was about to turn 26. I'm 31 now.

I'm regularly astounded by how much weight is placed on that particular decade shift. Although I'd like to think I've matured, there's little difference between me as a person in her 20s and me as a person in her 30s. I still have the same interests and desires as well as comparable flaws and insecurities (aside from the added neurosis derived from hearing and reading that I'm suddenly old). I still love shoegaze, video games and NPR, I still laugh (a lot) at poop jokes, and I still don't want children.

There, of course, have been a handful of life-changing events that have served to demarcate the before and after. Among them are my move to Finland and, I believe, this relapse. 

I'm still fighting my way through it - if I focus on relaxing my leg, my limp is only slightly noticeable, and I'm able to produce scrawl enough to mark exams - so I'm not really sure yet how and in what way these changes will take shape. Except, I know this: I will never again walk, climb stairs or write without a sense of thankfulness. 

The fact I'm no longer in my 20s might be obvious in that this happened at all; it's only now, in my 30s, that my motor skills have suffered. And that's what I'm most afraid of - that this is the ushering in of a new, less-mobile normal. That it's all downhill from here.

In the meantime, that thought is hereby banished from my mind.

Selfish

I opened my last post with a metaphor I've often had in mind: MS as an abuser. The weird thing is, this relapse, while mostly something I wish never, ever happened in the first place, has also been something of a friendly slap in the face or a bucket of ice water over the head.

When this happened, I was treating myself, well, like shit. Did you happen to catch when I compared myself to a Podling, drained of her essence? "Oh, yeah, I haven't been able to write or whatever, but I'm pretty sure it'll be okay."

It, as I well knew, was not okay.

So, here is what I must do from now on:

1. take my medication. Before, whenever it might have decreased my productivity, I didn't take it. Medication will now take top priority in this equation, without exception.
2. listen to music more. It keeps me in touch with who I am, which is someone other than an expat, immigrant, imperfect speaker of Finnish, 'different' or somehow unable to fulfil (mostly my own) expectations.
3. read more books (of my choosing). I can't teach if I don't learn. I can't learn if I don't take the time to do so.
4. write. I'll hate my life if I don't.
5. find a way to ditch the anxiety at any cost, save my motor skills.
6. rest. Relax.
7. be prepared for it to show. Up until the first of this month, revealing the fact of my MS was always met with surprise. It may well not be so anymore.
8. be selfish, and make more selfish decisions. If you want that in self-help speak, I should work on prioritising my own needs.

tl:dr, Some things have to change.